Your views are being sought in an Australian study on attitudes to population screening for Duchenne muscular dystrophy Screening for Duchenne muscular dystrophy has been running in Wales for over 21 years. This screening has seen a reduction in the incidence of boys being born with Duchenne in Wales between July 1990 – April 2010, […]
Survey of attitudes to population screening for Duchenne muscular dystrophy
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TREAT-NMD international conference: report
TREAT-NMD have published a summary of the international conference held in Geneva in early November – the report can be found on the TREAT-NMD website. The conference addressed range of issues involved in therapy development and delivery in inherited neuromuscular diseases as well as discussing the latest research developments in this area. Including: • Natural History • Designing Effective […]
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National Disability Insurance Scheme
UPDATE: On Friday 19th August, State Premiers, Territory Chief Ministers and Disability Ministers attended the Council of Australian Governments (COAG) meeting in Canberra, and the NDIS was high on the agenda. Below is the joint media release from the Prime Minister’s office (visit the Every Australian Counts website for more information). Prime Minister – Joint […]
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