Save Our Sons and the Duchenne Foundation have launched the world’s first petition signing bionic arm in an effort to raise awareness for young sufferers of Duchenne Muscular Dystrophy (DMD). The robot arm was invented to do what many young DMD sufferers can’t – write. The arm takes its commands from the website,TheMostPowerfulArm.com, where visitors […]
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The 12th Annual Asian and Oceanic Myology Centre (AOMC) Scientific Meeting – 6th – 8th June 2013 Abstract Submission deadline：March 31, 2013 Early bird registration deadline：May 24, 2013 Visit the AOMC conference website to register and for further information.
Your views are being sought in an Australian study on attitudes to population screening for Duchenne muscular dystrophy Screening for Duchenne muscular dystrophy has been running in Wales for over 21 years. This screening has seen a reduction in the incidence of boys being born with Duchenne in Wales between July 1990 – April 2010, […]
TREAT-NMD have published a summary of the international conference held in Geneva in early November – the report can be found on the TREAT-NMD website. The conference addressed range of issues involved in therapy development and delivery in inherited neuromuscular diseases as well as discussing the latest research developments in this area. Including: • Natural History • Designing Effective […]
Our goal is to ensure excellence in diagnostic methods and clinical management, and equal access to clinical trials and new therapies, for all individuals in Australia and New Zealand affected by neuromuscular disorders.
We can achieve our vision by establishing a cohesive, integrated neuromuscular network which enables people to work together across Australia and New Zealand, for the well-being of patients.