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Recruitment request: SMA patient and family study

The Centre for Community-Driven Research (CCDR*) are partnering with SMA and MD organisations in Australia to conduct a study to understand the experience of those affected by SMA and their needs in relation to future treatment, support, care and information. This study will result in a report that we can all use for future advocacy […]

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UCL Clinical Research Associates

UCL Institutes of Neurology and Child Health MRC Centre for Neuromuscular Diseases  CLINICAL RESEARCH ASSOCIATES X 3 An exciting opportunity for three Clinical Research Associates has arisen at the MRC Centre for Neuromuscular Diseases, UCL Institutes of Neurology and Child Health. The CRAs will have the opportunity to undertake experimental and/or clinical research in neuromuscular […]

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Development of Allied Health and Nursing Best Practice Guidelines for Duchenne muscular dystrophy

The development of the Duchenne muscular dystrophy clinical practice guideline is currently underway utilising an NHMRC guided process. In keeping with this process, a call for committee members to join the scientific steering group is now open. We would welcome your participation. The guideline development process involves a number of steps. As a snapshot, the […]

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New Cardiac DMD Registry

Sudden Cardiac Death in Duchenne Muscular Dystrophy: Incidence and Prevention Patient Registry Please click the below link for more information: Approved_DMD Patient Registry Flier_v2 (2)

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