Tag Archives | research

Recruitment Request: Understanding patients’ and carers’ decision making in Spinal Muscular Atrophy Care

Associate Professor Michelle Farrar and colleagues from Sydney Children’s Hospital (Randwick) are conducting a new research project to lean more about what factors are important when making decisions related to treatment for  spinal muscular atrophy (SMA). They are seeking the views of parents/carers of people with SMA, health care providers and the wider community. Please find attached more […]

Read full story Comments are closed