Your views are being sought in an Australian study on attitudes to population screening for Duchenne muscular dystrophy Screening for Duchenne muscular dystrophy has been running in Wales for over 21 years. This screening has seen a reduction in the incidence of boys being born with Duchenne in Wales between July 1990 – April 2010, […]
TREAT-NMD have published a summary of the international conference held in Geneva in early November – the report can be found on the TREAT-NMD website. The conference addressed range of issues involved in therapy development and delivery in inherited neuromuscular diseases as well as discussing the latest research developments in this area. Including: • Natural History • Designing Effective […]
UPDATE: On Friday 19th August, State Premiers, Territory Chief Ministers and Disability Ministers attended the Council of Australian Governments (COAG) meeting in Canberra, and the NDIS was high on the agenda. Below is the joint media release from the Prime Minister’s office (visit the Every Australian Counts website for more information). Prime Minister – Joint […]
Best evidence into best practice
Our goal is to ensure excellence in diagnostic methods and clinical management, and equal access to clinical trials and new therapies, for all individuals in Australia and New Zealand affected by neuromuscular disorders.
We can achieve our vision by establishing a cohesive, integrated neuromuscular network which enables people to work together across Australia and New Zealand, for the well-being of patients.