Inclusion body myositis (IBM)
In collaboration with Mike Hanna, UK
To participate in this study, contact: Merrilee Needham
Research site: Royal North Shore Hospital, Sydney
There is no cure for IBM, nor is there a standard course of treatment – IBM does not respond to immunosuppressive therapy.
Future potential therapy
Mike Hanna in the UK is screening the exome and has access to a large biobank in the UK.
Mike Hanna is also adopting a novel treatment trial approach to IBM – PhIII trial is a possibility later this year and may involve an Australian site.
Australia has an opportunity to nominate patients for the study and to contribute patient samples to this bank (stored locally in NSW).