Currently there are no accurate predictors of the need for a sleep study in children with DMD. Symptoms of breathing problems in DMD are slow to develop, and often are not noticed by the individual. Once symptoms of waking with a headache or being sleep during the day are reported, a sleep study often finds […]
Author Archive | MelM
The 1000 Norms Project is underway and causing a buzz in popular media. Researchers from the University of Sydney’s Faculty of Health Sciences will build a human database to scientifically measure and classify what is ‘normal’ across the population. The landmark project will catalogue human variation among healthy Australians between the ages three to 100-years-old […]
The Duchenne Foundation Australia invites you to register your attendance for the Melbourne Symposium 2014, “A Breath of Fresh Air”. The conference provides an opportunity for patients, carers and health care professionals to come together with international respiratory and cardiac experts to give those affected by Duchenne, first-world knowledge and support. Program details are available […]
The inaugural Annual Scientific Report for the Centre for Research Excellence in Neuromuscular Disorders (CRE-NMD) and Australasian Neuromuscular Network (ANN) has been released! The report details our goals, activities, teamwork and achievements for the year of 2012. Please follow the link to find out more: http://www.ann.org.au/annual-scientific-report-2012/.
Our goal is to ensure excellence in diagnostic methods and clinical management, and equal access to clinical trials and new therapies, for all individuals in Australia and New Zealand affected by neuromuscular disorders.
We can achieve our vision by establishing a cohesive, integrated neuromuscular network which enables people to work together across Australia and New Zealand, for the well-being of patients.