Project DMD is a research project focused on exploring the journey to adulthood for young people with Duchenne Muscular Dystrophy (DMD). AHNA researcher Tegan Pinese is coordinating the project to better understand what living as an adult with DMD is like and how young people and their families can best be supported to plan and prepare for adulthood. Interviews have been completed with young people with DMD, parents/caregivers and health professionals about the transition to adulthood.
The next stage of the project is to develop resources and tools to assist with planning for life as an adult. Young people with DMD who have left school are needed to participate in developing the video resource. Please visit the Project DMD website: http://www.projectdmd.com/ or view the flyer for further information about the project.