Development of Best Practice Guidelines for paediatric Charcot-Marie-Tooth disease
The development of best practice guidelines, focusing on the clinical management of children with Charcot-Marie-Tooth disease (CMT) is currently underway, utilising a National Health and Medical Research Council (NHMRC) guided process (http://www.nhmrc.gov.au/guidelines/search). A call for members to join the Scientific Advisory Committee is now open. We welcome your participation.
The guideline development process includes:
- A systematic review of current literature – to be completed by Eppie Yiu and Joshua Burns, with input from the Scientific Advisory Committee.
- A series of modified Delphi method rounds to develop consensus statements – involving the Committee and an international representation of clinicians involved in the care of children with CMT.
Seeking Expressions of Interest for the Scientific Advisory Committee
The Scientific Advisory Committee will consist of a small group of professionals with demonstrated expertise in the care of children with Charcot-Marie-Tooth disease (CMT). The primary role of the Committee will be to provide expert advice pertaining to content matters of scope, methodology and formulation of the guidelines. Specifically, the Committee will:
- Review and provide input into the development of the scope of the systematic review and guidelines.
- Review the outcomes of the systematic review.
- Review and provide input into the writing of preliminary recommendations for Delphi.
- Actively participate in and support the Delphi process.
- Review and provide input into the final guidelines document pre- and post- public consultation.
- Clinicians (medical, nursing and allied health professionals) with demonstrated expertise in the care of children with CMT.
- Postgraduate research training in a neuromuscular field is desirable.
- Able to meet the required time commitment for active participation in the development process (approximately 1 hour/week for 2015).
Members of the Scientific Advisory Committee should be available to contribute to regular teleconferences. The timing will vary according to the progress of the guideline. The time commitment is estimated to be approximately one hour per week for the year 2015. The first teleconference will be held in April 2015.
If you are interested in working in this Committee please forward a copy of your CV to: email@example.com.
EOI closes: 5pm Wednesday 6th May2015
(Australian Eastern standard time)
Once the Committee is convened, a confirmation email will be sent to all members.
Thank you for your consideration. We look forward to developing this best practice guideline to improve the care of children with CMT. For any further queries please contact Dr Eppie Yiu (firstname.lastname@example.org) or Professor Joshua Burns (email@example.com).
This work is funded by a NHMRC–European Union Collaborative Research Grant Scheme (#1055131), and a NHMRC Early Career Fellowship (APP1073323).