Professor Joshua Burns and the Centre of Research Excellence in Neuromuscular Disorders have just finalised a new calculation tool to measure the level of disability in children with Charcot-Marie-Tooth disease (CMT).
The CMTPedS Calculator is a user-friendly online tool developed to support the CMT Pediatric Scale, which collects validated measures of strength, dexterity, sensation, gait, balance, power and endurance to establish severity of disease and monitor changes over time in children with CMT. It can also be used to evaluate outcomes in studies of existing or new treatments for CMT.
Clinicians and researchers can enter patient data live into the CMTPedS Calculator to rapidly determine disease severity and generate a clinical report for patient correspondence and records. To start using the calculator, go to www.cmtpeds.org.
The CMTPedS site features links to the CMTPedS validation paper in Annals of Neurology, as well as training resources and videos of how to use the CMT Pediatric Scale and calculator.