Archive | Uncategorized RSS feed for this section

ANN Annual Meeting 6 September 2018

We are looking forward to welcoming you to the annual ANN meeting for another productive and inspiring program. The ANN meeting is taking place on Thursday 6th September 2018 in Sydney. We are delighted to be meeting alongside the Duchenne ACTT Now conference. The Duchenne ACTT now program will certainly be an exciting one with […]

Read full story Comments are closed

Project DMD

Project DMD is a research project focused on exploring the journey to adulthood for young people with Duchenne Muscular Dystrophy (DMD). AHNA researcher Tegan Pinese is coordinating the project to better understand what living as an adult with DMD is like and how young people and their families can best be supported to plan and […]

Read full story Comments are closed

1000 Norms Project Update

The 1000 Norms Project has again been featured in the media! To date, over 600 people have volunteered to be in the study. To find out more, watch this video where Professor Josh Burns explains the important meaning behind the project and how it can help patients with neuromuscular disorders. The researchers are still seeking […]

Read full story Comments are closed

The Triple F Study

The Children’s Neurosciences Centre at The Royal Children’s Hospital, Melbourne, is conducting a study investigating footwear, fatigue and falls in paediatric neuromuscular disease. The study is seeking children and adolescents aged 4 to 18 years who are able to walk at least 75 metres and are diagnosed with Duchenne or Becker muscular dystrophy (DMD/BMD) or […]

Read full story Comments are closed