Project DMD is a research project focused on exploring the journey to adulthood for young people with Duchenne Muscular Dystrophy (DMD). AHNA researcher Tegan Pinese is coordinating the project to better understand what living as an adult with DMD is like and how young people and their families can best be supported to plan and […]
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The 1000 Norms Project has again been featured in the media! To date, over 600 people have volunteered to be in the study. To find out more, watch this video where Professor Josh Burns explains the important meaning behind the project and how it can help patients with neuromuscular disorders. The researchers are still seeking […]
The Children’s Neurosciences Centre at The Royal Children’s Hospital, Melbourne, is conducting a study investigating footwear, fatigue and falls in paediatric neuromuscular disease. The study is seeking children and adolescents aged 4 to 18 years who are able to walk at least 75 metres and are diagnosed with Duchenne or Becker muscular dystrophy (DMD/BMD) or […]
The Duchenne Foundation Australia invites you to register your attendance for the Melbourne Symposium 2014, “A Breath of Fresh Air”. The conference provides an opportunity for patients, carers and health care professionals to come together with international respiratory and cardiac experts to give those affected by Duchenne, first-world knowledge and support. Program details are available […]
Our goal is to ensure excellence in diagnostic methods and clinical management, and equal access to clinical trials and new therapies, for all individuals in Australia and New Zealand affected by neuromuscular disorders.
We can achieve our vision by establishing a cohesive, integrated neuromuscular network which enables people to work together across Australia and New Zealand, for the well-being of patients.