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Development of Allied Health and Nursing Best Practice Guidelines for Duchenne muscular dystrophy

The development of the Duchenne muscular dystrophy clinical practice guideline is currently underway utilising an NHMRC guided process. In keeping with this process, a call for committee members to join the scientific steering group is now open. We would welcome your participation. The guideline development process involves a number of steps. As a snapshot, the […]

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New Cardiac DMD Registry

Sudden Cardiac Death in Duchenne Muscular Dystrophy: Incidence and Prevention Patient Registry Please click the below link for more information: Approved_DMD Patient Registry Flier_v2 (2)

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Care-NMD Survey for DMD

To access the survey please click here: https://www.research.net/s/dmd2014survey Duchenne muscular dystrophy or DMD is the most common of the muscular dystrophies, affecting approximately 1 in every 3,500 newborn boys. It is caused by a fault in a gene called the dystrophin or DMD gene on the X chromosome. A fault in this gene stops the body […]

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Duchenne Foundation’s Melbourne Symposium 2014

The Duchenne Foundation’s Melbourne Symposium was held on the 29th March in Melbourne, coinciding with the ANN Annual Meeting. Audio files of the Symposium’s presentations may be of interest to ANN Members and can be accessed on the Duchenne Foundation website via the link: http://goo.gl/50JB0r    

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