Title: Australian National Duchenne Muscular Dystrophy Registry Description:The availability of health information via the internet has become a critical resource for clinicians, researchers and affected families. Parents and advocacy groups have also become increasingly aware of international registries that provide opportunities for children to access new therapies through clinical trials. In Australia, Duchenne muscular dystrophy […]
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Our goal is to ensure excellence in diagnostic methods and clinical management, and equal access to clinical trials and new therapies, for all individuals in Australia and New Zealand affected by neuromuscular disorders.
We can achieve our vision by establishing a cohesive, integrated neuromuscular network which enables people to work together across Australia and New Zealand, for the well-being of patients.