About Paula Bray

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ANN Annual Meeting 6 September 2018

We are looking forward to welcoming you to the annual ANN meeting for another productive and inspiring program. The ANN meeting is taking place on Thursday 6th September 2018 in Sydney. We are delighted to be meeting alongside the Duchenne ACTT Now conference. The Duchenne ACTT now program will certainly be an exciting one with […]

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Recruitment request: SMA patient and family study

The Centre for Community-Driven Research (CCDR*) are partnering with SMA and MD organisations in Australia to conduct a study to understand the experience of those affected by SMA and their needs in relation to future treatment, support, care and information. This study will result in a report that we can all use for future advocacy […]

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Project DMD

Project DMD is a research project focused on exploring the journey to adulthood for young people with Duchenne Muscular Dystrophy (DMD). AHNA researcher Tegan Pinese is coordinating the project to better understand what living as an adult with DMD is like and how young people and their families can best be supported to plan and […]

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