Our 2014 Annual Scientific Meeting was a huge success with close to 100 delegates attending, making this our biggest meeting yet! The meeting was held on the 27th and 28th March across The Royal Children’s Hospital and Murdoch Childrens Research Institute in Parkville, Melbourne. Thank you to all those who attended and presented. You all […]
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The second Annual Report for the Centre of Research Excellence in Neuromuscular Disorders (CRE-NMD) and Australasian Neuromuscular Network (ANN) has been released.The report details our goals, activities, teamwork and achievements for the year of 2013. Please follow the link to access the report: CRE/ANN Annual Report 2013
Currently there are no accurate predictors of the need for a sleep study in children with DMD. Symptoms of breathing problems in DMD are slow to develop, and often are not noticed by the individual. Once symptoms of waking with a headache or being sleep during the day are reported, a sleep study often finds […]
The 1000 Norms Project is underway and causing a buzz in popular media. Researchers from the University of Sydney’s Faculty of Health Sciences will build a human database to scientifically measure and classify what is ‘normal’ across the population. The landmark project will catalogue human variation among healthy Australians between the ages three to 100-years-old […]
Our goal is to ensure excellence in diagnostic methods and clinical management, and equal access to clinical trials and new therapies, for all individuals in Australia and New Zealand affected by neuromuscular disorders.
We can achieve our vision by establishing a cohesive, integrated neuromuscular network which enables people to work together across Australia and New Zealand, for the well-being of patients.