The Federal Treasurer Wayne Swan has announced $1 billion over four years to kick start the National Disability Insurance Scheme. For more visit the Every Australian Counts website.
MJA Clinical Trials Research Summit
Medical Journal of Australia Clinical Trials Research Summit 18 May 2012 INVESTIGATOR-INITIATED CLINICAL TRIALS Improving the landscape Registrations close 30 April 2012 Click here for more information and how to register
Congenital Muscular Dystrophy (CMD) Family Guide available
The CMD Family Guide is now available from the TREAT-NMD website. The link to the document is also available from the ANN resources section under ‘Standards of Care’, along with the Consensus Statement on Standard of Care for Congenital Muscular Dystrophies .
Charcot Marie-Tooth disease: natural history study
The purpose of this study is to look at the natural history of CMT to see how it changes over time. Particular emphasis will be put on studying people with CMT1B, CMT2A, CMT4A, and CMT4C, though all people with CMT are encouraged to participate. Participants are invited back on a yearly basis to determine how [...]
TREAT-NMD international conference: report
TREAT-NMD have published a summary of the international conference held in Geneva in early November – the report can be found on the TREAT-NMD website. The conference addressed range of issues involved in therapy development and delivery in inherited neuromuscular diseases as well as discussing the latest research developments in this area. Including: • Natural History • Designing Effective [...]
